Italy launches massive registry to track rare hereditary polyposis

NCT ID NCT07461246

First seen Mar 11, 2026 · Last updated May 27, 2026 · Updated 10 times

Summary

This study is creating a national Italian registry of 1500 people with familial adenomatous polyposis (FAP) and related conditions. Researchers will collect medical history, genetic data, and treatment outcomes to better understand how the disease progresses and how care can be improved. The goal is to standardize management and support future research, but no new treatment is being tested.

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Contacts and locations

Locations

  • Fondazione IRCCS Istituto Nazionale dei Tumori

    Milan, 20133, Italy

Conditions

Explore the condition pages connected to this study.