New palliative care approach aims to ease daily struggles for cystic fibrosis patients

NCT ID NCT04923880

First seen Jun 27, 2026 ยท Last updated Jun 27, 2026

Summary

This study tested a new program called 'Improving Life with CF' at five cystic fibrosis (CF) centers. The program helps doctors regularly check in on patients' symptoms and quality of life, and provides guides for managing common problems. Over 600 people with CF took part to see if this approach improves their daily well-being and care.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Emory University

    Atlanta, Georgia, 30322, United States

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

  • Northwell Health

    New York, New York, 11040, United States

  • Northwell Health-Lenox Hill

    New York, New York, 10075, United States

  • Stonybrook University

    New York, New York, 11794, United States

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