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New online therapy aims to boost daily skills in genetic syndrome patients

NCT ID NCT07563218

Recruiting now Symptom relief Sponsor: IRCCS Eugenio Medea Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests a web-based program called I-TOPS that helps adolescents and young adults with genetic syndromes improve problem-solving, organization, and social skills. Participants and a parent or caregiver complete online modules and video sessions with a therapist. The goal is to see if this family-centered approach can enhance adaptive functioning and quality of life.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
I-TOPS online problem-solving program
What this could lead to
If it works, this could provide an accessible, home-based therapy to help people with genetic syndromes improve planning, social skills, and emotional control.
What could go wrong
This is a small, early-stage trial with only 42 participants, so results may not apply to everyone. The intervention is behavioral, not a drug, so benefits may be modest.

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Conditions

The condition(s) this trial relates to.

hereditary disease Social Skills

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

GENETIC SYNDROME

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Scientific Institute, IRCCS E. Medea, Bosisio Parini, Lecco, Italy

    RECRUITING

    Bosisio Parini, Lecco, 23842, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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