Parent training may ease mental health struggles in kids with rare genetic disorders

NCT ID NCT06125093

Completed Symptom relief Sponsor: Fundació Sant Joan de Déu Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a 22-week online parenting program (Incredible Years) for families of children aged 3-7 with genetic abnormalities and mental health or developmental problems. 53 families were randomly assigned to the program or usual care. The goal was to see if parents would engage with and find the program helpful, potentially improving child behavior and reducing parental stress.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Incredible Years Autism Spectrum and Language Delays Parent Program (IY-ASLD®) - a behavioral parenting intervention
What this could lead to: If successful, this could provide an evidence-based parenting program to help manage behavioral and developmental symptoms in children with genetic conditions.
What could go wrong: This is a small, early-stage trial (53 participants) focused on feasibility, not a large-scale efficacy study. Results may not apply broadly, and the intervention requires significant time commitment from parents.

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Conditions

The condition(s) this trial relates to.

autism autism spectrum disorder hereditary disease Psychological Well-Being

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AUTISM OR AUTISTIC TRAITS GENETIC SYNDROME LANGUAGE DEVELOPMENT PARENTING

Contacts and locations

Locations

Hospital Universitari Parc Taulí

Sabadell, Spain
Hospital Universitari Vall d'Hebron

Barcelona, Spain
Sant Joan de Deu

Esplugues de Llobregat, Barcelona, 08950, Spain

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