Russian study to track rare bone disease without treatment
NCT ID NCT07390240
First seen Feb 05, 2026 · Last updated May 19, 2026 · Updated 11 times
Summary
This study aims to observe the natural course of hypophosphatasia (HPP) in 55 children and adults in Russia who have not received enzyme-replacement therapy. Researchers will track symptoms, lab results, and quality of life to better understand how the disease unfolds over time. No new treatments are being tested; the goal is simply to gather information.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for HYPOPHOSPHATASIA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Research Site
RECRUITINGMoscow, Russia
-
Research Site
RECRUITINGRostov-on-Don, Russia
-
Research site
COMPLETEDMoscow, Russia
-
Research site
RECRUITINGSaint Petersburg, Russia
Conditions
Explore the condition pages connected to this study.