Massive patient registry tracks rare hormone disorder treatment

NCT ID NCT01922440

Ongoing Knowledge-focused Sponsor: Takeda Source: ClinicalTrials.gov ↗

Summary

This study is a long-term registry that aims to understand the safety and effectiveness of a hormone replacement drug (rhPTH[1-84]) for people with chronic hypoparathyroidism. It will follow over 1,300 adults and children who are already receiving treatment as part of their normal doctor's care. The main goal is to collect real-world information on how the treatment affects patients' health, quality of life, and risk of complications over time.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Locations

AHEPA University General Hospital of Thessaloniki

Thessaloniki, 54636, Greece
AKH Wien, Universitaetsklinik fuer Innere Medizin III

Vienna, 1090, Austria
Aallborg University Hospital

Aalborg, 9000, Denmark
Aarhus Universitetshospital

Aarhus N, 8200, Denmark
Academy of Diabetes Thyroid and Endocrine

El Paso, Texas, 79935, United States
Akademiska Sjukhuset - Uppsala University Hospital

Uppsala, 75185, Sweden
Albany Med Endocrine Specialists

Albany, New York, 12206, United States
Alleghany General Hospital

Pittsburgh, Pennsylvania, 15212, United States
Azienda Ospedaliera San Giovanni Addolorata

Roma, RM 00184, Italy
Azienda Ospedaliero-Universitaria Careggi

Florence, FI 50139, Italy
Azienda Ospedaliero-Universitaria Citta della Salute e della Scienza - Ospedale Molinette

Torino, TO 10126, Italy
Boston Medical Center

Boston, Massachusetts, 02118, United States
Brigham and Women's Hospital

Boston, Massachusetts, 02115, United States
Brokhin Medical PC

Brooklyn, New York, 11223, United States
Cedars-Sinai Medical Center

Los Angeles, California, 90048, United States
Charite-Universitiitsmedizin Berlin (CCM)

Berlin, 10117, Germany
Children's Hospital Los Angeles

Los Angeles, California, 90027, United States
Cleveland Clinic

Cleveland, Ohio, 44195, United States
Columbia University Medical Center

New York, New York, 10032, United States
Diabetes & Endocrine Associates, Methodist Physicians Clinic Diabetes and Endocrine Specialists

Omaha, Nebraska, 68114, United States
Diabetes and Thyroid Center of Fort Worth, PLLC

Fort Worth, Texas, 76132, United States
Diakonie-Klinikum Stuttgart

Stuttgart, Baden-Wurttemberg, 70176, Germany
Dr. Joselito Cabaccan

San Jose, California, 95148, United States
East-West Medical Research Institute

Honolulu, Hawaii, 96814, United States
Endocrine Associates of Long Island, P.C.

Smithtown, New York, 11787, United States
Endocrinology Associates of Armstrong

Indiana, Pennsylvania, 15701, United States
Endokrinologie Zentrum Ulm

Ulm, 89075, Germany
Endokrinologikum Frankfurt

Frankfurt, 60596, Germany
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

Milan, MI 20122, Italy
General Hospital Of Athens - Korgialenio-Benakio E.E.S.

Athens, 11526, Greece
General Hospital of Athens Alexandra

Athens, 11528, Greece
General Hospital of Athens Georgios Gennimatas

Athens, 11527, Greece
Gerald Friedman Diabetes Institute

New York, New York, 10022, United States
Hallett Center for Diabetes and Endocrinology

East Providence, Rhode Island, 02914, United States
Hanson Clinical Research Center

Port Charlotte, Florida, 33952, United States
Harvard Medical School

Boston, Massachusetts, 02115, United States
Haukeland University Hospital

Bergen, 5012, Norway
Hippokrateion General Hospital of Thessaloniki

Thessaloniki, 54642, Greece
Hospital Del Mar

Barcelona, 08003, Spain
Hospital Universitario 12 de Octubre

Madrid, 28041, Spain
Hospital Universitario San Cecilio

Granada, 18016, Spain
Indiana University Hospital

Indianapolis, Indiana, 46202, United States
Karolinska Universitetssjukhuset Solna

Stockholm, 17176, Sweden
Loyola University Medical Center

Maywood, Illinois, 60153, United States
MVZ endokrinologikum Göttingen

Göttingen, 37075, Germany
Massachusetts General Hospital

Boston, Massachusetts, 02114, United States
Mayo Clinic - Rochester

Rochester, Minnesota, 55905, United States
McMaster University

Oakville, Ontario, L6J IX8, Canada
Mecklenburg Medical Group

Charlotte, North Carolina, 28211, United States
Medicover Neu-Ulm Mvz

Neu-Ulm, 89231, Germany
Medicover Neuroendokrinologie MVZ

München, 81667, Germany
Medicover Oldenburg MVZ

Oldenburg, 26122, Germany
Medicover Saarbuecken Mvz

Saarbrücken, 66111, Germany
Medizinische Fakultaet Carl Gustav Carus Technische Universitaet Dresden

Dresden, 01307, Germany
Medizinische Hochschule Hannover

Hanover, Lower Saxony, 30625, Germany
Medizinische Universitaetsklinik Graz, Universitätsklinik Für Innere Medizin Graz

Graz, 8036, Austria
Medstar Union Memorial Hospital

Baltimore, Maryland, 21218, United States
Model Clinical Research

Baltimore, Maryland, 21204, United States
Nordsjaellands Hospital - Hillerod

Hilleroed, 3400, Denmark
Norfolk And Norwich University Hospital - Norwich Medical School

Norwich, NR4 7UQ, United Kingdom
Northern Nevada Endocrinology

Reno, Nevada, 89511, United States
Northshore University Health System

Evanston, Illinois, 60201, United States
Nova Scotia Health Authority

Halifax, Nova Scotia, B3H 2Y9, Canada
Ohio Health Research Institute

Columbus, Ohio, 43214, United States
Ohio State University Wexner Medical Center

Columbus, Ohio, 43210, United States
Palm Research Center, Inc.

Las Vegas, Nevada, 89128, United States
Physicians East, PA

Greenville, North Carolina, 27834, United States
Praxis an der Kaiserreiche

Berlin, 12159, Germany
Queen Elizabeth Hospital-Mindelsohn Way

Birmingham, England, B15, United Kingdom
Regions Hospitalet Viborg

Viborg, 8800, Denmark
Rutgers Robert Wood Johnson Medical School

New Brunswick, New Jersey, 08901, United States
Rutgers-Robert Wood Johnson Medical School

New Brunswick, New Jersey, 08901, United States
Spesialistsentret Pilestredet Park

Oslo, 0176, Norway
State University Of New York Upstate Medical University

Syracuse, New York, 13214, United States
Suburban Endocrinology & Diabetes

Arlington Heights, Illinois, 60005, United States
Texas Diabetes and Endocrinology, P.A.

Austin, Texas, 78731, United States
The Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States
Thomas Jefferson University

Philadelphia, Pennsylvania, 76307, United States
Thyroid & Endocrine Center of Florida

Sarasota, Florida, 34239, United States
Thyroid Endocrinology and Diabetes

Dallas, Texas, 75208, United States
Tilak Mallik, MD F.A.C.E., LCC

Marrero, Louisiana, 70072, United States
Universitaet Zur Luebeck

Lübeck, 23538, Germany
Universitaetsklinik Aachen

Aachen, 52074, Germany
Universitaetsklinikum Wuerzburg

Würzburg, 97080, Germany
Universitetssjukhuset I Linkoping

Linköping, 58185, Sweden
Universitetssjukhuset I Orebro

Örebro, 70185, Sweden
University Hospital Duesseldorf

Düsseldorf, North Rhine-Westphalia, 40225, Germany
University Physicians Group Research Division

Staten Island, New York, 10301, United States
University of Alabama at Birmingham

Birmingham, Alabama, 35205, United States
University of Arizona Medical Center

Tucson, Arizona, 85714, United States
University of Chicago Medical Center

Chicago, Illinois, 60637, United States
University of Colorado Hospital

Aurora, Colorado, 80045, United States
University of Hospitals of Leicester

Leicester, LE1 5WW, United Kingdom
University of Leipzig

Leipzig, Saxony, 04103, Germany
University of Minnesota

Minneapolis, Minnesota, 55455, United States
University of Missouri

Columbia, Missouri, 65212, United States
University of South Carolina

Columbia, South Carolina, 29203, United States
University of Vermont

South Burlington, Vermont, 05403, United States
University of Wisconsin

Madison, Wisconsin, 53792, United States
Yale University

New Haven, Connecticut, 06510, United States

Conditions

Explore the condition pages connected to this study.

HYPOPARATHYROIDISM