Russian study tracks rare bone Disease's natural course
NCT ID NCT07390240
First seen Feb 05, 2026 · Last updated Apr 30, 2026 · Updated 9 times
Summary
This study aims to understand how hypophosphatasia (HPP), a rare genetic bone disease, naturally progresses in children and adults in Russia. Researchers will collect detailed information on symptoms, genetics, and health outcomes from 55 participants. The goal is to better characterize the disease to improve future diagnosis and care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGMoscow, Russia
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Research Site
RECRUITINGRostov-on-Don, Russia
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Research site
COMPLETEDMoscow, Russia
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Research site
RECRUITINGSaint Petersburg, Russia
Conditions
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