Massive study tracks tiny babies to unlock secrets of early development
NCT ID NCT00009633
First seen Jun 27, 2026 · Last updated Jul 02, 2026 · Updated 2 times
Summary
This study follows thousands of very low birth-weight and premature infants to track their development over time. Researchers collect data on pregnancy, birth, and early childhood outcomes to identify factors that influence brain and body development. No treatments are tested—this is purely an observational registry to guide future research.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Brown University, Women & Infants Hospital of Rhode Island
ACTIVE_NOT_RECRUITINGProvidence, Rhode Island, 02905, United States
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Case Western Reserve University, Rainbow Babies and Children's Hospital
RECRUITINGCleveland, Ohio, 44106, United States
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Children's Mercy Hospital
RECRUITINGKansas City, Missouri, 64108, United States
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Cincinnati Children's Medical Center
RECRUITINGCincinnati, Ohio, 45267, United States
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Duke University
RECRUITINGDurham, North Carolina, 27710, United States
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Emory University
RECRUITINGAtlanta, Georgia, 30303, United States
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George Washington University
COMPLETEDWashington D.C., District of Columbia, 20052, United States
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Harvard University
COMPLETEDCambridge, Massachusetts, 02138, United States
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Northwestern Lurie Children's Hospital of Chicago
NOT_YET_RECRUITINGChicago, Illinois, 60611, United States
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RTI International
ACTIVE_NOT_RECRUITINGDurham, North Carolina, 27705, United States
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Research Institute at Nationwide Children's Hospital
ACTIVE_NOT_RECRUITINGColumbus, Ohio, 43205, United States
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Sharp Mary Birch Hospital for Women & Newborns
NOT_YET_RECRUITINGSan Diego, California, 92123, United States
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Stanford University
RECRUITINGPalo Alto, California, 94304, United States
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Tufts Medical Center
COMPLETEDBoston, Massachusetts, 02111, United States
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35233, United States
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University of California - Los Angeles
RECRUITINGLos Angeles, California, 90025, United States
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University of California at San Diego
COMPLETEDSan Diego, California, 92103-8774, United States
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University of Iowa
RECRUITINGIowa City, Iowa, 52242, United States
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University of Miami
COMPLETEDMiami, Florida, 33136, United States
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University of Mississippi Medical Center - Children's of Mississippi
NOT_YET_RECRUITINGJackson, Mississippi, 39216, United States
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University of New Mexico
RECRUITINGAlbuquerque, New Mexico, 87131, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Rochester
ACTIVE_NOT_RECRUITINGRochester, New York, 14642, United States
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University of Tennessee
COMPLETEDMemphis, Tennessee, 38163, United States
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University of Texas Health Science Center at Houston
RECRUITINGHouston, Texas, 77030, United States
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University of Texas Southwestern Medical Center at Dallas
RECRUITINGDallas, Texas, 75235, United States
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University of Utah
RECRUITINGSalt Lake City, Utah, 84108, United States
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Wake Forest University
COMPLETEDCharlotte, North Carolina, 27157, United States
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Wayne State University
RECRUITINGDetroit, Michigan, 48201, United States
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Yale University
COMPLETEDNew Haven, Connecticut, 06504, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Gentle touch and voice may ease stress for premature babies — a pilot trial puts it to the test
- Breast milk from donors vs. formula: which builds a better brain for tiny babies?
- Gentler resuscitation may protect fragile lungs in tiniest babies
- Nasal fentanyl spray could ease painful eye exams for premature babies
- Could cameras and microphones replace wires for premature babies?
- Brain blood flow in tiny patients: study seeks safe surgery limits