Real-World study tracks Jivi's performance in hemophilia a patients
NCT ID NCT03932201
First seen Jun 27, 2026 · Last updated Jul 02, 2026 · Updated 2 times
Summary
This study looks at how the drug Jivi (damoctocog alfa pegol) works for people with hemophilia A in real-world settings, not just in controlled trials. Researchers are tracking bleeding episodes, side effects, and how satisfied patients and doctors are with the treatment. About 371 people who have used Jivi before are taking part.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Banner MD Anderson Cancer Center
Phoenix, Arizona, 85012, United States
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East Carolina University - Brody School of Medicine
Greenville, North Carolina, 27834, United States
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Georgetown University
Washington D.C., District of Columbia, 20007, United States
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Many locations
Multiple Locations, Belgium
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Many locations
Multiple Locations, Brazil
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Many locations
Multiple Locations, Canada
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Many locations
Multiple Locations, Colombia
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Many locations
Multiple Locations, Denmark
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Many locations
Multiple Locations, Germany
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Many locations
Multiple Locations, Greece
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Many locations
Multiple Locations, Italy
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Many locations
Multiple Locations, Japan
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Many locations
Multiple Locations, Kuwait
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Many locations
Multiple Locations, Netherlands
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Many locations
Multiple Locations, Norway
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Many locations
Multiple Locations, Saudi Arabia
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Many locations
Multiple Locations, Slovenia
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Many locations
Multiple Locations, Spain
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Many locations
Multiple Locations, Sweden
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Many locations
Multiple Locations, Switzerland
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Many locations
Multiple Locations, Taiwan
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Many locations
Multiple Locations, United Arab Emirates
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Orthopaedic Hospital DBA Orthopaedic Institute for Children
Los Angeles, California, 90007, United States
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Regents of University of Minnesota
Minneapolis, Minnesota, 55454, United States
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South Alabama Medical Science Foundation
Mobile, Alabama, 36688, United States
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The Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders
Orange, California, 92868, United States
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Tulane University
New Orleans, Louisiana, 70112, United States
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University California Davis
Davis, California, 95616, United States
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University of Colorado Hemophilia and Thrombosis Center
Aurora, Colorado, 80045, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- A Once-a-Week shot could transform hemophilia Care—Even for those with inhibitors
- Can a new clotting factor offer better bleed protection for severe hemophilia?
- Do newer hemophilia drugs protect joints better? study aims to find out
- Newborn screening study aims to catch rare diseases at birth
- Could home blood tests transform hemophilia care? study seeks patient views
- New clotting factor shows promise for hemophilia a bleeds