Heart registry hopes to personalise treatment for 1-in-500 condition

NCT ID NCT07381894

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study is a national registry in the UK that collects health information from 2500 people with hypertrophic cardiomyopathy (HCM), a common inherited heart condition. Researchers will gather data from medical records, heart scans, blood tests, and genetics to better understand the disease and improve risk prediction. The goal is to help doctors personalise treatments for each patient in the future.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this registry could help doctors better predict which treatments work best for each person with hypertrophic cardiomyopathy, leading to more personalised care.
What could go wrong
This is an observational registry, not a treatment trial. It collects existing data and does not test any new therapy, so it cannot directly improve health outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • University of Manchester

    RECRUITING

    Manchester, M23 9LT, United Kingdom

    Contact Email: •••••@•••••

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