Hidden in your genes: study probes what people do with surprise health warnings
NCT ID NCT02595957
Summary
This research program aims to learn how people understand and act on unexpected genetic findings that could impact their health, even if those findings weren't the original reason for their genetic test. Researchers are enrolling 5,000 people who have received such findings to complete surveys and interviews about their experience, healthcare actions, and family communication. The study also offers some participants detailed health evaluations at the NIH to better understand the real-world impact of these genetic discoveries.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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