What do your genes really mean? new study investigates

NCT ID NCT02595957

First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 28 times

Summary

This study looks at people who have a gene variant (called a secondary finding) that was found during genetic testing for another reason. Researchers want to learn how these variants affect health and how people understand and share their results. Up to 5,000 participants will complete surveys and interviews, and some may visit the NIH for further evaluation. The goal is to improve how genetic information is used in healthcare.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for BREAST CANCER are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.