New study aims to predict Paget's disease before it starts

NCT ID NCT05309954

First seen Jan 11, 2026 · Last updated May 08, 2026 · Updated 20 times

Summary

This study looks at whether genetic testing can predict who will develop Paget's disease of the bone, a condition that can cause pain and deformity. Researchers will test 135 people aged 45 and older who have a parent or sibling with Paget's but don't have it themselves. Participants get a bone scan at the start and again after five years to see if genetic markers can spot early signs of the disease.

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Contacts and locations

Locations

  • NHS Lothian

    Edinburgh, EH4 2XU, United Kingdom

Conditions

Explore the condition pages connected to this study.