Families help unlock genetic secrets of intellectual disability and autism

NCT ID NCT06871696

Recruiting now Knowledge-focused Sponsor: Institut National de la Santé Et de la Recherche Médicale, France Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study aims to build a database of genetic information from 1,000 people with intellectual disabilities or autism spectrum disorders of known genetic cause. Families will answer online questionnaires to share clinical details, helping researchers understand how different genetic changes affect health over time. The goal is to improve personalized care and identify risks for complications.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could lead to better personalized medical management and a deeper understanding of how specific genetic mutations affect people with intellectual disabilities and autism.
What could go wrong: This is an observational study, not a treatment trial. It relies on family-reported data, which may be incomplete or biased, and results may take years to translate into clinical practice.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

autism spectrum disorder intellectual disability Rare Diseases

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AUTISM SPECTRUM DISORDER GENETIC OF INTELLECTUAL DEFICIENCY

Contacts and locations

Locations

RaDiCo-GenIDA
RECRUITING

Paris, Île-de-France Region, 75012, France

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