Scientists dig into amish gene pool to unlock rare disease secrets

NCT ID NCT00359580

First seen Nov 20, 2025 · Last updated May 15, 2026 · Updated 29 times

Summary

This study looked at 157 people from Amish and Mennonite communities to find the genes behind certain inherited disorders that are more common in these groups. Researchers collected blood or cheek swab samples and built a computer database of family trees using community records. The goal was to better understand these rare diseases and improve future diagnosis and care.

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Contacts and locations

Locations

  • Clinic for Special Children

    Strasburg, Pennsylvania, 17579, United States

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.