Rare disease study explores family impact
NCT ID NCT07348926
First seen Jan 28, 2026 · Last updated May 01, 2026 · Updated 17 times
Summary
This study looks at how the daily independence of young children with rare genetic disorders affects their families' mental health and quality of life. Researchers will assess 45 children aged 0-4 and their caregivers using questionnaires. The goal is to help doctors and therapists provide better support for these families.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Bahcesehir University
RECRUITINGIstanbul, 34053, Turkey (Türkiye)
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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