New study maps eye disease to speed up future treatments
NCT ID NCT04127006
First seen Feb 03, 2026 · Last updated May 16, 2026 · Updated 17 times
Summary
This study follows 103 adults with retinitis pigmentosa caused by EYS gene mutations over 4 years. Researchers measure changes in vision, retinal sensitivity, and eye structure to understand how the disease naturally progresses. The goal is to develop better ways to test future treatments.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Centre hospitalier National d'Ophtalmologie des Quinze-Vingts
Paris, 75012, France
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Colorado Retina Associates
Denver, Colorado, 80230, United States
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Duke University Eye Center
Durham, North Carolina, 27710, United States
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Emory Eye Center
Atlanta, Georgia, 30322, United States
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Hadassah Medical Center
Jerusalem, Israel
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Helsinki University Hospital
Helsinki, Finland
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Hospital for Sick Children
Toronto, Canada
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Kellogg Eye Center, University of Michigan
Ann Arbor, Michigan, 48105, United States
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Massachusetts Eye and Ear
Boston, Massachusetts, 02114, United States
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Oregon Health Science University Casey Eye Institute
Portland, Oregon, 97239, United States
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Radboud University
Nijmegen, Netherlands
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Retina Foundation of the Southwest
Dallas, Texas, 75231, United States
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University of California, San Francisco
San Francisco, California, 94143-0344, United States
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University of Miami: Neuro-ophthalmology Department
Miami, Florida, 33136, United States
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University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, 15213, United States
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University of Tubingen
Tübingen, Germany
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University of Wisconsin-Madison: McPherson Eye Research Institute
Madison, Wisconsin, 53705, United States
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Vitreo-Retinal Associates
Gainesville, Florida, 32607, United States
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Wilmer Eye Institute at Johns Hopkins
Baltimore, Maryland, 21287-9277, United States
Conditions
Explore the condition pages connected to this study.