Scientists track vision loss to pave way for future treatments

NCT ID NCT04127006

Summary

This study aims to understand how vision changes over time in adults with a specific genetic form of retinitis pigmentosa (caused by EYS gene mutations). Researchers will observe 103 participants for four years, measuring their vision and eye structure in detail. The goal is to gather essential information to help design and measure the success of future treatment trials.

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Contacts and locations

Locations

  • Centre hospitalier National d'Ophtalmologie des Quinze-Vingts

    Paris, 75012, France

  • Colorado Retina Associates

    Denver, Colorado, 80230, United States

  • Duke University Eye Center

    Durham, North Carolina, 27710, United States

  • Emory Eye Center

    Atlanta, Georgia, 30322, United States

  • Hadassah Medical Center

    Jerusalem, Israel

  • Helsinki University Hospital

    Helsinki, Finland

  • Hospital for Sick Children

    Toronto, Canada

  • Kellogg Eye Center, University of Michigan

    Ann Arbor, Michigan, 48105, United States

  • Massachusetts Eye and Ear

    Boston, Massachusetts, 02114, United States

  • Oregon Health Science University Casey Eye Institute

    Portland, Oregon, 97239, United States

  • Radboud University

    Nijmegen, Netherlands

  • Retina Foundation of the Southwest

    Dallas, Texas, 75231, United States

  • University of California, San Francisco

    San Francisco, California, 94143-0344, United States

  • University of Miami: Neuro-ophthalmology Department

    Miami, Florida, 33136, United States

  • University of Pittsburgh Medical Center

    Pittsburgh, Pennsylvania, 15213, United States

  • University of Tubingen

    Tübingen, Germany

  • University of Wisconsin-Madison: McPherson Eye Research Institute

    Madison, Wisconsin, 53705, United States

  • Vitreo-Retinal Associates

    Gainesville, Florida, 32607, United States

  • Wilmer Eye Institute at Johns Hopkins

    Baltimore, Maryland, 21287-9277, United States

Conditions

Explore the condition pages connected to this study.