New drug access for Tourette's: ecopipam offered to patients before approval

NCT ID NCT07093541

First seen Nov 01, 2025 · Last updated May 18, 2026 · Updated 25 times

Summary

This program gives children, teens, and adults aged 6 to 50 with Tourette's disorder early access to the study drug ecopipam before it is approved for sale. The main goals are to check if the drug is safe and tolerable over the long term, and to see if it improves quality of life. Participants receive the drug from their own doctor and are followed with monthly visits for the first year, then every three months.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Access Clinical Trials, INC

    AVAILABLE

    Nashville, Tennessee, 37203, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • BCM-Texas Children's Hospital

    AVAILABLE

    Houston, Texas, 77030, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Belkis Delgado, MD, PA

    AVAILABLE

    Miami, Florida, 33166, United States

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Boston Children's Hospital

    AVAILABLE

    Boston, Massachusetts, 02115, United States

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  • Cincinnati Children's Hospital

    AVAILABLE

    Cincinnati, Ohio, 45229-3039, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Cortica Glendale

    AVAILABLE

    Glendale, California, 91203, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Cortica Marin

    AVAILABLE

    San Rafael, California, 94903, United States

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Emory University

    AVAILABLE

    Atlanta, Georgia, 30329, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Johns Hopkins Hospital

    AVAILABLE

    Baltimore, Maryland, 21287, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Massachusetts General Hospital

    AVAILABLE

    Boston, Massachusetts, 02114, United States

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  • Mount Sinai

    AVAILABLE

    New York, New York, 10019, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • NYU Langone

    AVAILABLE

    New York, New York, 10016, United States

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Neurobehavioral Medicine Group

    AVAILABLE

    Bloomfield Hills, Michigan, 48302, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • North Star Medical Research, LLC

    AVAILABLE

    Middleburg Heights, Ohio, 44130, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Northwestern University

    AVAILABLE

    Chicago, Illinois, 60611, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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  • Norton Children's Research Institute

    AVAILABLE

    Louisville, Kentucky, 40202, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Parkinson's Center of Boca Raton

    AVAILABLE

    Boca Raton, Florida, 33486, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Providence

    AVAILABLE

    Portland, Oregon, 97225, United States

    Contact Email: •••••@•••••

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    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Stony Brook Medicine

    AVAILABLE

    Stony Brook, New York, 11794, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Chicago (Pritzker)

    AVAILABLE

    Chicago, Illinois, 60637, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Massachusetts- Memorial Health

    AVAILABLE

    Worcester, Massachusetts, 01655, United States

    Contact Email: •••••@•••••

    Contact

  • University of Miami

    AVAILABLE

    Miami, Florida, 33136, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of South Florida

    AVAILABLE

    St. Petersburg, Florida, 33486, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Vanderbilt University Medical Center

    AVAILABLE

    Nashville, Tennessee, 37232, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Washington University in St. Louis

    AVAILABLE

    St Louis, Missouri, 63110, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Yale Child Study Center

    AVAILABLE

    New Haven, Connecticut, 06511, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.