Doctors launch major study to track rare disease Patients' journeys
NCT ID NCT03329274
Summary
This study aims to create a registry to better understand Erdheim-Chester disease and related rare conditions. Researchers will collect health information from 500 participants to learn how these diseases affect people's lives and how different treatments work over time. Some participants may be asked to complete a brief phone interview, but this is optional.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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Locations
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Memorial Sloan Kettering Cancer Center
RECRUITINGNew York, New York, 10065, United States
Contact
Contact Phone: •••-•••-••••
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.