Massive global study to track ENT problems in rare lung disease
NCT ID NCT04611516
First seen Jan 11, 2026 · Last updated May 14, 2026 · Updated 16 times
Summary
This study follows 1000 people with Primary Ciliary Dyskinesia (PCD) for two years to see how their ear, nose, and throat symptoms change over time. Researchers will collect information during regular clinic visits to better understand the course of the disease. No new treatments are being tested; the goal is simply to learn more about PCD.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Bern
RECRUITINGBern, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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