Hidden costs of PANS: new study reveals financial toll of IVIG treatment
NCT ID NCT06818656
First seen Jun 25, 2026 · Last updated Jun 26, 2026 · Updated 1 time
Summary
This completed study surveyed 65 U.S. families to understand the economic and quality-of-life impact of IVIG treatment for PANS/PANDAS. Researchers asked about medical visits, insurance, work absences, and children's school attendance. The goal is to shed light on the hidden costs of treating—or not treating—this condition.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- Active substance
- IVIG (intravenous immunoglobulin)
- What this could lead to
- If successful, this research could highlight the economic and social burden of PANS/PANDAS and support better insurance coverage or treatment access.
- What could go wrong
- This is a small, completed survey study—not a treatment trial. It measures costs and quality of life, not whether IVIG works. Results may not apply to all patients.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Brain Inflammation Collaborative
Delafield, Wisconsin, 53018, United States
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