Hidden costs of childhood brain inflammation revealed in new survey
NCT ID NCT06818656
First seen Nov 01, 2025 · Last updated May 06, 2026 · Updated 27 times
Summary
This completed study surveyed 65 people with PANS or PANDAS (or their parents) to understand how IVIG treatment impacts family finances, parents' ability to work, and children's school attendance. The goal is to describe the economic and quality-of-life effects of treating—or not treating—PANS with IVIG. No new treatment was tested; instead, the study gathers real-world data to guide future care decisions.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Brain Inflammation Collaborative
Delafield, Wisconsin, 53018, United States
Conditions
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