Major registry launches to track new muscular dystrophy treatments
NCT ID NCT07402122
Summary
This study is creating a patient registry to collect health information from people with Duchenne or Becker muscular dystrophy. It will track how new treatments work in real-world settings and aim to improve care quality across German-speaking countries. The registry will include 1500 participants and use a smartphone app to gather quality-of-life data alongside clinical information.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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