New national registry launches to map the journey of muscular dystrophy patients
Knowledge-focused
Not yet recruiting
This study is creating a national patient registry for people with Duchenne or Becker muscular dystrophy. It aims to collect health data from up to 1500 participants to better understand the diseases and monitor how new treatments work in everyday life. The goal is to use this in…
Sponsor: Dr. Andreas Ziegler • Aim: Knowledge-focused
Last updated Apr 02, 2026 04:12 UTC