New registry aims to improve care for muscular dystrophy patients
Knowledge-focused
Not yet recruiting
This study is creating a registry for people with Duchenne and Becker muscular dystrophy, as well as symptomatic female carriers. The goal is to collect health data and quality-of-life information to monitor how new therapies work in real-world settings. Up to 1,500 participants …
Sponsor: Dr. Andreas Ziegler • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:05 UTC