New registry aims to track Real-World effects of muscular dystrophy treatments
NCT ID NCT07402122
First seen Feb 12, 2026 · Last updated May 06, 2026 · Updated 12 times
Summary
This study creates a registry (a database) for people with Duchenne or Becker muscular dystrophy, including symptomatic female carriers. The goal is to collect health information and quality-of-life data to monitor how new therapies work in everyday care. No treatment is given; participants simply share their medical data through clinics and an app. Up to 1,500 people will join from German-speaking countries.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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