New registry aims to improve care for muscular dystrophy patients
NCT ID NCT07402122
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is creating a registry for people with Duchenne and Becker muscular dystrophy, as well as symptomatic female carriers. The goal is to collect health data and quality-of-life information to monitor how new therapies work in real-world settings. Up to 1,500 participants from German-speaking countries will be enrolled, with no age restrictions. The registry will help doctors and researchers improve care and develop better treatment guidelines.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could provide real-world evidence on how new treatments work in everyday care, helping to improve guidelines and quality of life for patients.
- What could go wrong
- This is an observational registry, not a treatment trial. It will not directly test a new drug or therapy, and results depend on consistent data collection from many centers.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
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