New registry aims to improve care for muscular dystrophy patients
NCT ID NCT07402122
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is creating a registry for people with Duchenne and Becker muscular dystrophy, as well as symptomatic female carriers. The goal is to collect health data and quality-of-life information to monitor how new therapies work in real-world settings. Up to 1,500 participants from German-speaking countries will be enrolled, with no age restrictions. The registry will help doctors and researchers improve care and develop better treatment guidelines.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could provide real-world evidence on how new treatments work in everyday care, helping to improve guidelines and quality of life for patients.
What could go wrong
This is an observational registry, not a treatment trial. It will not directly test a new drug or therapy, and results depend on consistent data collection from many centers.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact