Data dive: 2500 Patients' records could speed up duchenne treatment advances
NCT ID NCT07609394
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This study will collect electronic health records from up to 2500 people with Duchenne or Becker muscular dystrophy, including female carriers, across U.S. clinics. The data will be combined with patient-reported information to give researchers a fuller picture of the diseases. The goal is to speed up treatment development and improve care standards, but no new drug or therapy is being tested.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could help researchers develop better treatments and refine care standards for Duchenne and Becker muscular dystrophy.
What could go wrong
This is an observational study, not a treatment trial. It may not directly improve outcomes, and data quality depends on how consistently clinics provide records.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Arkansas Children's Hospital
RECRUITINGLittle Rock, Arkansas, 72202, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's National Medical Center
RECRUITINGWashington D.C., District of Columbia, 20010, United States
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Duke University Medical Center
RECRUITINGDurham, North Carolina, 27710, United States
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Primary Children's Hospital
RECRUITINGSalt Lake City, Utah, 84113, United States
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UC Davis Health
NOT_YET_RECRUITINGSacramento, California, 95817, United States
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UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
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University of Iowa Health Care
RECRUITINGIowa City, Iowa, 52242, United States
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University of Utah Health
RECRUITINGSalt Lake City, Utah, 84132, United States
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Yale Children's Hospital
RECRUITINGNew Haven, Connecticut, 06511, United States