Data dive: 2500 Patients' records could speed up duchenne treatment advances

NCT ID NCT07609394

Recruiting now Knowledge-focused Sponsor: The Duchenne Registry Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study will collect electronic health records from up to 2500 people with Duchenne or Becker muscular dystrophy, including female carriers, across U.S. clinics. The data will be combined with patient-reported information to give researchers a fuller picture of the diseases. The goal is to speed up treatment development and improve care standards, but no new drug or therapy is being tested.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could help researchers develop better treatments and refine care standards for Duchenne and Becker muscular dystrophy.
What could go wrong: This is an observational study, not a treatment trial. It may not directly improve outcomes, and data quality depends on how consistently clinics provide records.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Becker muscular dystrophy Duchenne muscular dystrophy muscular dystrophy neuromuscular disease caused by qualitative or quantitative defects of dystrophin symptomatic form of muscular dystrophy of Duchenne and Becker in female carriers

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BECKER MUSCULAR DYSTROPHY DUCHENNE MUSCULAR DYSTROPHY (DMD) DYSTROPHINOPATHY DYSTROPHINOPATHY SYMPTOMATIC FEMALE CARRIER

Contacts and locations

Locations

Arkansas Children's Hospital
RECRUITING

Little Rock, Arkansas, 72202, United States
Children's Hospital Colorado
RECRUITING

Aurora, Colorado, 80045, United States
Children's National Medical Center
RECRUITING

Washington D.C., District of Columbia, 20010, United States
Duke University Medical Center
RECRUITING

Durham, North Carolina, 27710, United States
Primary Children's Hospital
RECRUITING

Salt Lake City, Utah, 84113, United States
UC Davis Health
NOT_YET_RECRUITING

Sacramento, California, 95817, United States
UT Southwestern Medical Center
RECRUITING

Dallas, Texas, 75390, United States
University of Iowa Health Care
RECRUITING

Iowa City, Iowa, 52242, United States
University of Utah Health
RECRUITING

Salt Lake City, Utah, 84132, United States
Yale Children's Hospital
RECRUITING

New Haven, Connecticut, 06511, United States

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