Massive down syndrome study aims to unlock health secrets
NCT ID NCT07625579
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This long-term study will follow up to 1,400 people with Down syndrome of all ages to better understand their health, development, and daily experiences. Participants and their caregivers will answer questions, share medical records, and may provide blood or saliva samples. Some may also take part in optional activities like sleep studies or brain imaging. The goal is to learn why certain health conditions are more common in Down syndrome and how to improve care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could reveal why certain health conditions are more common in Down syndrome and point to ways to improve care and quality of life.
What could go wrong
This is an observational study, not a treatment trial. It may take years to produce actionable results, and findings may not apply to everyone with Down syndrome.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for DOWN SYNDROME are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
John Hopkins University
NOT_YET_RECRUITINGBaltimore, Maryland, 21287, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Kansas University Medical Center
NOT_YET_RECRUITINGKansas City, Kansas, 66160, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
St. Jude Children's Research Hospital
NOT_YET_RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Texas Children's Hosptial/Baylor College of Medicine
NOT_YET_RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
The Children's Hospital of Philadelphia
NOT_YET_RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
-
The Children's Hospital of Philadelphia
NOT_YET_RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of California Irvine
NOT_YET_RECRUITINGOrange, California, 92868, United States
Contact Phone: •••-•••-••••
-
University of Colorado Anschutz Medical Campus
NOT_YET_RECRUITINGAurora, Colorado, 80045, United States
Contact Phone: •••-•••-••••
-
University of Miami
NOT_YET_RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Minnesota
NOT_YET_RECRUITINGMinneapolis, Minnesota, 55455, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of North Carolina at Chapel Hill
NOT_YET_RECRUITINGChapel Hill, North Carolina, 27599, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Pittsburgh
NOT_YET_RECRUITINGPittsburgh, Pennsylvania, 15203, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Texas Health Science Center at San Antionio
NOT_YET_RECRUITINGSan Antonio, Texas, 78207, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Washington
NOT_YET_RECRUITINGSeattle, Washington, 98195, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Wisconsin-Madison
RECRUITINGMadison, Wisconsin, 53705, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Washington University in St. Louis
NOT_YET_RECRUITINGSt Louis, Missouri, 63108, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••