New tool aims to measure health in down syndrome for the first time
NCT ID NCT04631237
First seen Oct 31, 2025 · Last updated Apr 30, 2026 · Updated 21 times
Summary
This study developed a new questionnaire called the Down Syndrome Health Instrument (DHI) to measure health in people with Down syndrome. Researchers worked with over 750 caregivers, individuals with Down syndrome, and doctors to create and test the tool. The goal is to help identify health needs and improve care for this population.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
Conditions
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