New tool aims to measure health in down syndrome for first time
NCT ID NCT04631237
First seen Oct 31, 2025 · Last updated Jun 13, 2026 · Updated 27 times
Summary
This study created a new tool called the Down Syndrome Health Instrument (DHI) to measure health in people with Down syndrome. Researchers worked with 758 caregivers, individuals with Down syndrome, and experts to develop and test the tool. The goal is to help doctors and researchers better understand and improve health in this population.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
Conditions
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