New drug shows promise for controlling rare swelling disorder

NCT ID NCT04307381

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested the long-term safety and effectiveness of donidalorsen, an injectable drug, in 20 people with hereditary angioedema (HAE), a condition that causes sudden, painful swelling attacks. Participants received different doses over 64 weeks. The main goal was to check for side effects, but researchers also tracked how often attacks occurred. This was an extension of an earlier study, meaning all participants had already received the drug before.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Donidalorsen (a drug given as an injection under the skin)

What this could lead to

If successful, this could provide a long-term treatment option to reduce swelling attacks in people with hereditary angioedema.

What could go wrong

This is a small, early-phase extension study with only 20 participants. It focuses on safety and dosing, not proof of cure. Results may not apply to all patients.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

hereditary angioedema

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Ionis Investigative Site

    Scottsdale, Arizona, 85251, United States

  • Ionis Investigative Site

    Santa Monica, California, 90404, United States

  • Ionis Investigative Site

    Plymouth, Minnesota, 55446, United States

  • Ionis Investigative Site

    Cincinnati, Ohio, 45231, United States

  • Ionis Investigative Site

    Hershey, Pennsylvania, 17033, United States

  • Ionis Investigative Site

    Dallas, Texas, 75231, United States

  • Ionis Investigative Site

    Amsterdam, 1105 AZ, Netherlands