Spanish registry aims to unlock secrets of rare muscle disease
NCT ID NCT07385443
First seen Feb 04, 2026 · Last updated May 05, 2026 · Updated 12 times
Summary
This study is creating a large national registry in Spain for people with Myotonic Dystrophy Type 1 (DM1), a rare genetic muscle condition. Researchers will collect medical information, genetic data, and patient reports from up to 3,000 participants. The goal is to better understand the disease and find people who may be eligible for future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Andalusia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Basque Country, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Canary Islands, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Cantabria, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Castilla-La Macha, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Catalonia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Madrid, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Valencia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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