Smartphone sensors and apps could revolutionize monitoring of rare muscle diseases

NCT ID NCT05798325

Completed Knowledge-focused Sponsor: Institut de Myologie, France Source: ClinicalTrials.gov ↗

First seen Jun 29, 2026 · Last updated Jun 30, 2026 · Updated 1 time

Summary

This study tests whether digital tools like smartphone apps, wearable sensors, and home spirometers can reliably track symptoms of neuromuscular diseases. Researchers will compare data collected at home with in-clinic measurements from 40 participants aged 12–60. The goal is to develop better, less burdensome ways to monitor disease progression in clinical trials and daily life.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could enable more accurate and less burdensome remote monitoring for neuromuscular disease patients, potentially improving clinical trial design and access to care.
What could go wrong: This is a small feasibility study (40 participants) focused on validating tools, not testing a treatment. The tools may not work for all patients or diseases, and results may not generalize.

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Conditions

The condition(s) this trial relates to.

neuromuscular disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

NEUROMUSCULAR DISEASES

Contacts and locations

Locations

Association Institut de Myologie

Paris, 75013, France
John Walton Muscular Dystrophy Research Centre

Newcastle upon Tyne, NE1 3BZ, United Kingdom

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