Smartphone sensors and apps could revolutionize monitoring of rare muscle diseases
NCT ID NCT05798325
First seen Jun 29, 2026 · Last updated Jun 30, 2026 · Updated 1 time
Summary
This study tests whether digital tools like smartphone apps, wearable sensors, and home spirometers can reliably track symptoms of neuromuscular diseases. Researchers will compare data collected at home with in-clinic measurements from 40 participants aged 12–60. The goal is to develop better, less burdensome ways to monitor disease progression in clinical trials and daily life.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could enable more accurate and less burdensome remote monitoring for neuromuscular disease patients, potentially improving clinical trial design and access to care.
What could go wrong
This is a small feasibility study (40 participants) focused on validating tools, not testing a treatment. The tools may not work for all patients or diseases, and results may not generalize.
Disclaimer
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Association Institut de Myologie
Paris, 75013, France
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John Walton Muscular Dystrophy Research Centre
Newcastle upon Tyne, NE1 3BZ, United Kingdom