Desmoid tumor study: is doing nothing the best medicine?

NCT ID NCT02547831

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study looked at 100 people with desmoid tumors (a rare, non-cancerous growth) to see what happens when doctors don't treat them right away. Instead, patients were monitored closely with scans, and treatment only started if the tumor grew. The goal was to learn how often these tumors stay stable without treatment, helping guide future care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could show that many desmoid tumors do not need immediate treatment, supporting a watch-and-wait approach as standard care.

What could go wrong

This is an observational study, not testing a new treatment. It may not change practice if many patients still need therapy later.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

desmoid tumor

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Fondazione IRCCS Istituto Tumori Milano

    Milan, 20133, Italy

  • Fondazione del Piemonte per l' Oncologia - IRCCS

    Candiolo, Torino, 10060, Italy