New study tracks families with inherited blood cancer genes

NCT ID NCT07019155

First seen Nov 20, 2025 · Last updated May 16, 2026 · Updated 24 times

Summary

This study follows people with inherited gene changes (especially in the DDX41 gene) that raise the risk of blood cancers like MDS and AML. Researchers will collect health information, blood, and other samples over 10 years to learn how these gene changes lead to cancer. Participants include people with the gene change and their relatives, even if they don't have the change. No treatments are tested; the goal is to better understand the disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.