New drug aims to control blood sugar in kids with rare condition

NCT ID NCT03941236

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is testing the long-term safety of dasiglucagon, a drug given as a continuous injection under the skin, in children with congenital hyperinsulinism (a condition causing dangerously low blood sugar). The trial includes 42 children who completed earlier studies. Researchers will monitor side effects and check if the drug helps reduce the need for tube feeding or surgery.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

dasiglucagon (a glucagon analog given as a continuous injection under the skin)

What this could lead to

If successful, dasiglucagon could provide a long-term treatment option to control blood sugar levels in children with congenital hyperinsulinism, potentially reducing the need for tube feeding or surgery.

What could go wrong

This is an extension trial with no placebo group, so results may be less definitive. The drug may cause side effects, and long-term benefits are not guaranteed.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Congenital Hyperinsulinism familial hyperinsulinism

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Alder Hey Children's Hospital NHS Foundation Trust

    Liverpool, United Kingdom

  • Children's Hospital Colorado

    Aurora, Colorado, 80045-7106, United States

  • Cook Children's Endocrinology and Diabetes Clinic

    Fort Worth, Texas, 76104-2710, United States

  • Great Ormond Street Hospital for Children NHS Foundation Trust

    London, United Kingdom

  • Hadassah Medical Center

    Jerusalem, 9765422, Israel

  • Manchester University NHS Foundation Trust

    Manchester, United Kingdom

  • NHS Greater Glasgow and Clyde

    Glasgow, United Kingdom

  • Otto von Guericke University Magdeburg, Department of Pediatrics

    Magdeburg, 39120, Germany

  • The Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • University Hospital Düsseldorf, Department of Pediatrics

    Düsseldorf, 40225, Germany