CRISPR gene editing offers hope for thalassemia patients to ditch transfusions

NCT ID NCT03655678

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a single treatment using CRISPR gene editing to modify a person's own blood stem cells, aiming to help people with severe beta-thalassemia stop needing regular blood transfusions. 59 participants received the therapy and were monitored for safety and how long they could go without transfusions. The goal was to see if this one-time treatment could control the disease long-term.

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Conditions

The condition(s) this trial relates to.

beta thalassemia beta-thalassemia major hematologic disorder hemoglobinopathy hereditary disease inherited hemoglobinopathy thalassemia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Ann & Robert Lurie Children's Hospital of Chicago

    Chicago, Illinois, 60611, United States

  • British Columbia Children's Hospital

    Vancouver, Canada

  • Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • Columbia University Medical Center

    New York, New York, 10032, United States

  • Columbia University Medical Center (21+ years)

    New York, New York, 10032, United States

  • Imperial College Healthcare NHS Trust, Hammersmith Hospital

    London, United Kingdom

  • Lucile Packard Children's Hospital

    Palo Alto, California, 94304, United States

  • Ospedale Pediatrico Bambino Gesù, IRCCS

    Rome, Italy

  • Regensburg University Hospital, Clinic and Polyclinic for Paediatric and Adolescent Medicine

    Regensburg, Germany

  • The Children's Hospital at TriStar Centennial Medical Center/ Sarah Cannon Center for Blood Cancers

    Nashville, Tennessee, 37203, United States

  • The Hospital for Sick Children

    Toronto, Canada

  • University College London Hospitals NHS Foundation Trust

    London, United Kingdom

  • University Hospital Tübingen

    Tübingen, Germany

  • Universitätsklinikum Düsseldorf Hospital Duesseldorf

    Düsseldorf, Germany