Heart disease patients join forces to shape future research

NCT ID NCT06469918

Recruiting now Knowledge-focused Sponsor: HeartWorks, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study creates a registry for 500 people with congenital heart disease (CHD) and their caregivers. Participants share their medical history to help researchers understand the disease better and design future clinical trials. Unlike a typical registry, members will actively guide which studies happen next.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could help design better clinical trials and treatments tailored to the needs of people with congenital heart disease.
What could go wrong: This is an observational registry, not a treatment trial. It will not directly improve health and may not lead to new therapies for years.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

congenital heart disease hypoplastic left heart syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CONGENITAL HEART DISEASE

Contacts and locations

Locations

HeartWorks, Inc.
RECRUITING

Rochester, Minnesota, 55901, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.