New study aims to unravel mysteries of rare brain vessel disease

NCT ID NCT05734404

First seen Jan 24, 2026 · Last updated May 12, 2026 · Updated 18 times

Summary

This study follows 40 adults with central nervous system vasculitis (CNSV), a rare and serious condition where blood vessels in the brain become inflamed, potentially causing strokes, memory loss, or dementia. Researchers will collect medical history and survey responses to learn how the disease develops and how treatments affect patients over time. The goal is to better understand CNSV, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Cleveland Clinic

    RECRUITING

    Cleveland, Ohio, 44195, United States

    Contact Email: •••••@•••••

  • Mayo Clinic

    RECRUITING

    Rochester, Minnesota, 55905, United States

    Contact Email: •••••@•••••

  • St. Joseph's Healthcare

    RECRUITING

    Hamilton, Canada

    Contact Email: •••••@•••••

  • University of Pennsylvania

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Email: •••••@•••••

  • University of Toronto/Sinai Health

    RECRUITING

    Toronto, Canada

    Contact Email: •••••@•••••

  • Vanderbilt University

    RECRUITING

    Nashville, Tennessee, 37232, United States

    Contact Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.