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New study tracks heart disease in rare genetic disorder

NCT ID NCT06865482

Recruiting now Knowledge-focused Sponsor: Lexeo Therapeutics Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study follows 65 people with Friedreich ataxia who also have a thickened heart muscle (cardiomyopathy). Researchers will measure changes in heart structure over time using imaging. The goal is to better understand how heart disease progresses in this condition, which could help design future treatments.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

cardiomyopathy Friedreich ataxia heart disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CARDIOMYOPATHY FRIEDREICH ATAXIA

Contacts and locations

Locations

  • Boston Children's Hospital

    RECRUITING

    Boston, Massachusetts, 02115, United States

  • Campinas State University (UNICAMP)

    RECRUITING

    Campinas, São Paulo, 13083-887, Brazil

  • Centre Hospitalier de Universite de Montreal (CHUM)

    RECRUITING

    Montreal, Quebec, H2X 0C1, Canada

  • Cincinnati Children's Hospital

    RECRUITING

    Cincinnati, Ohio, 45229, United States

  • Federico II University

    RECRUITING

    Naples, 80131, Italy

  • Hospital Das Clínicas Da Universidade Federal De Minas Gerais (UFMG)

    RECRUITING

    Belo Horizonte, Minas Gerais, 30130, Brazil

  • Hospital Univeritario Puerta de Hierro de Majadahonda

    RECRUITING

    Majadahonda, Madrid, 28222, Spain

  • Hospital Universitário Walter Cantídio - Universidade Federal do Ceará

    RECRUITING

    Fortaleza, Ceará, 60430, Brazil

  • Indiana University - Riley Children's Health

    RECRUITING

    Indianapolis, Indiana, 46202, United States

  • Institut de Cardiologie Hopital Pitie Salpetriere

    RECRUITING

    Paris, 75013, France

  • Instituto D'or de Pesquisa e Ensino - Hospital São Rafael

    RECRUITING

    Salvador, Estado de Bahia, 41253-190, Brazil

  • Mayo Clinic

    RECRUITING

    Rochester, Minnesota, 55905, United States

  • Motol University Hospital and the Second Faculty of Medicine

    RECRUITING

    Prague, 15006, Czechia

  • Oregon Health & Science University

    RECRUITING

    Portland, Oregon, 97239, United States

  • UPC Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto

    RECRUITING

    Ribeirão Preto, São Paulo, 14051, Brazil

  • University Hospital Tübingen

    RECRUITING

    Tübingen, Baden-Wurttemberg, 72076, Germany

  • University of California San Diego

    RECRUITING

    La Jolla, California, 92037, United States

  • University of South Florida

    RECRUITING

    Tampa, Florida, 33612, United States

  • Washington University School of Medicine in St. Louis

    RECRUITING

    St Louis, Missouri, 63110, United States

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