New care model aims to ease the burden of cystic fibrosis

NCT ID NCT04923880

Summary

This study tested a new support program designed to improve the quality of life for people with cystic fibrosis (CF) and their caregivers. The program involved regular check-ins to identify and address common problems like pain, stress, and emotional distress. It was implemented at five CF care centers across the country to see if it was practical and helpful for patients and families.

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Contacts and locations

Locations

  • Emory University

    Atlanta, Georgia, 30322, United States

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

  • Northwell Health

    New York, New York, 11040, United States

  • Northwell Health-Lenox Hill

    New York, New York, 10075, United States

  • Stonybrook University

    New York, New York, 11794, United States

Conditions

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