Breathing problems in brittle bone disease: new study seeks answers
NCT ID NCT05317637
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study examines lung and heart function in 18 adults with osteogenesis imperfecta (OI), also known as brittle bone disease. Researchers want to understand why breathing problems are the leading cause of death in OI. Participants will undergo lung function tests and chest imaging to measure lung capacity and airway health.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could reveal why people with osteogenesis imperfecta often have breathing issues, pointing toward future treatments.
What could go wrong
This is an observational study with only 18 participants, so findings may not apply to everyone with OI. It does not test any treatment.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Hospital for Special Surgery
New York, New York, 10021, United States
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Kennedy Krieger Institute / Hugo W. Moser Research Institute
Baltimore, Maryland, 21205, United States
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University of California Los Angeles
Los Angeles, California, 90095, United States