Rare cancer registry aims to unlock treatment secrets

NCT ID NCT05430971

Recruiting now Knowledge-focused Sponsor: Immune Oncology Research Institute Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study creates a worldwide registry for people diagnosed with Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN), a very rare blood cancer. Researchers will collect information on how the disease presents, how it is treated, and what happens to patients over time. The goal is to learn from real-world data to improve future treatment recommendations. No experimental therapy is given; participants simply allow their medical data to be used for research.

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Conditions

The condition(s) this trial relates to.

Blastic Plasmacytoid Dendritic Cell Neoplasm CD4+/CD56+ hematodermic neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BLASTIC PLASMACYTOID DENDRITIC CELL NEOPLASM (BPDCN)

Contacts and locations

Locations

Broomfield Hospital, Haematology Mid and South Essex University Hospitals Group
RECRUITING

Chelmsford, Essex, CM1 7ET, United Kingdom
Children's Hospital of Eastern Ontario, University of Ottawa
RECRUITING

Ottawa, Ontario, K1H 8L1, Canada
China Medical University Children's Hospital
RECRUITING

Taichung, 40447, Taiwan
Cyprus Society of Haematology
RECRUITING

Nicosia, 2019, Cyprus
Department of Biomedicine and Prevention, University of Rome Tor Vergata
RECRUITING

Roma, 00133, Italy
Department of Medical Oncology, Dr. B.R.A Institute Rotary Cancer Hospital, All India Institute of Medical Sciences
RECRUITING

New Delhi, 110029, India
Department of hematology, Kuwait Cancer Control Center
RECRUITING

Kuwait City, 42262, Kuwait
Fundeni Clinical Institute, Department of Acute Leukemia
RECRUITING

Bucharest, 022328, Romania
Hematology Center named after prof. R. Yeolyan
RECRUITING

Yerevan, 0014, Armenia
Istanbul University, Oncology Institute
RECRUITING

Istanbul, 34093, Turkey (Türkiye)
King Hussein Cancer Center (KHCC)
RECRUITING

Amman, 11941, Jordan
M. Iashvili Children's Central Hospital
RECRUITING

Tbilisi, 0159, Georgia
Moffitt Cancer Center
RECRUITING

Tampa, Florida, 33612, United States
Oncology Center, Mansoura University Faculty of Medicine
RECRUITING

Al Mansurah, 7650030, Egypt
Pediatric Hematology Oncology, Children's Welfare Teaching Hospital, Medical City, College of Medicine, University of Baghdad
RECRUITING

Baghdad, 61023, Iraq
Seattle Children's Cancer and Blood Disorders Center
RECRUITING

Seattle, Washington, 98145, United States
Sylvester Comprehensive Cancer Center, University of Miami
RECRUITING

Miami, Florida, 33136, United States
Turkish Pediatric Cancer Registry
RECRUITING

Ankara, 06690, Turkey (Türkiye)
United Lincolnshire Teaching Hospital NHS Trust
RECRUITING

Lincoln, Lincolnshire, LN2 5QY, United Kingdom
University of Calgary
RECRUITING

Calgary, Alberta, T2N 1N4, Canada
University of Health Sciences, Umraniye Research and Education Hospital, Pediatric Hematology and Oncology Department, Pediatric Bone Marrow Transplantation Unit
RECRUITING

Istanbul, 34766, Turkey (Türkiye)
University of Perugia - Azienda Ospedaliera Perugia
RECRUITING

Perugia, 06129, Italy

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