NIH launches major study to unlock secrets of rare bone diseases
NCT ID NCT00024804
First seen Jun 27, 2026 · Last updated Aug 05, 2026 · Updated 6 times
Summary
This study aims to collect information and bone samples from up to 1,000 people with bone or mineral disorders, such as tumor-induced osteomalacia or familial tumoral calcinosis. Participants receive standard medical evaluations and may provide bone tissue from surgery or a biopsy. No experimental treatments are given; the goal is to better understand these conditions and inspire future research.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could improve understanding of bone disorders and guide future research toward better treatments.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly benefit participants and may not lead to any new therapies.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States