Lifeline for HAE patients: study offers continued access to promising treatment
NCT ID NCT04933721
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study gives people with hereditary angioedema (HAE) who were in earlier berotralstat trials continued access to the medication. About 139 participants will receive berotralstat and be monitored for side effects. The goal is to keep treating their condition while gathering more safety information.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Study Center
Ottawa, Canada
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Study Center
Brno, Czechia
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Study Center
Pilsen, Czechia
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Study Center
Grenoble, France
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Study Center
Marseille, France
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Study Center
Paris, France
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Study Center
Frankfurt, Germany
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Study Center
Skopje, North Macedonia
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Study Center
Krakow, Poland
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Study Center
Martin, Slovakia
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Study Center
Cape Town, South Africa
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Study Center
Daegu, South Korea
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Study Center
Gwangju, South Korea
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Study Center
Seoul, South Korea
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Study Center
Madrid, Spain
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Study Center
Bristol, United Kingdom