New registry aims to speed up PKD research

NCT ID NCT01873235

Recruiting now Knowledge-focused Sponsor: University of Maryland, Baltimore Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study is creating a registry and biobank of 350 adults with autosomal dominant polycystic kidney disease (ADPKD) in the Mid-Atlantic region. Participants will provide medical information, have kidney volume measured by MRI, and donate blood, urine, and DNA samples. The goal is to build a resource that helps researchers design and conduct future clinical trials to slow or prevent disease progression.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry will provide a valuable resource for researchers to design future studies and trials for polycystic kidney disease.
What could go wrong: This is an observational study, not a treatment trial. It builds infrastructure for future research, so it does not directly test any new therapy.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

autosomal dominant polycystic kidney disease polycystic kidney disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

POLYCYSTIC KIDNEY DISEASE

Contacts and locations

Locations

University of Maryland School of Medicine General Clinical Research Center
RECRUITING

Baltimore, Maryland, 21201, United States

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