New study aims to uncover hidden clues to prevent sudden death in dravet syndrome
NCT ID NCT05472389
First seen Jan 15, 2026 · Last updated May 13, 2026 · Updated 17 times
Summary
This study looks at how repeated seizures may harm breathing and heart control in people with Dravet syndrome, a severe form of epilepsy. Researchers will monitor 92 children and adults over time to find early warning signs that could help prevent sudden unexpected death. The goal is to identify key risk factors and pave the way for future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Department of Paediatrics and Paediatric Neurology, Antwerp University Hospital
Edegem, 2650, Belgium
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HFME Hospices Civils de Lyon
Bron, Rhone, 69500, France
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Hôpital Neurologique Pierre Wertheimer Hospices Civils de Lyon
Bron, Rhone, 69500, France
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Klinik und Poliklinik für Epileptologie, Universitätsklinikum
Bonn, 53127, Germany
Conditions
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