Massive 52,000-Patient study maps the hidden journey of a rare heart and nerve disease
NCT ID NCT06355934
Summary
This study aims to understand the real-world experience of people with ATTR amyloidosis, a rare disease that affects the heart and nerves. Researchers will analyze existing health records of over 52,000 patients to learn about their symptoms, treatments, quality of life, and healthcare costs. The goal is to gather knowledge to help improve future care, but this study does not test any new treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for ATTR AMYLOIDOSIS are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Research Site
COMPLETEDEden Prairie, Minnesota, 55344, United States
-
Research Site
RECRUITINGCalgary, Alberta, T2P 4K7, Canada
-
Research Site
COMPLETEDBeijing, China
-
Research Site
COMPLETEDChangsha, China
-
Research Site
COMPLETEDChengdu, China
-
Research Site
COMPLETEDGuangzhou, China
-
Research Site
COMPLETEDWuhan, China
-
Research Site
COMPLETEDHorsens, Denmark
-
Research Site
COMPLETEDBerlin, Germany
-
Research Site
COMPLETEDTokyo, Japan
-
Research Site
RECRUITINGLisbon, Portugal
-
Research Site
NOT_YET_RECRUITINGPorto, Portugal
-
Research Site
COMPLETEDA Coruña, Spain
-
Research Site
COMPLETEDBarcelona, Spain
-
Research Site
COMPLETEDBilbao, Spain
-
Research Site
COMPLETEDEl Palmar, Spain
-
Research Site
COMPLETEDHuelva, Spain
-
Research Site
COMPLETEDLas Palmas de Gran Canaria, Spain
-
Research Site
COMPLETEDMadrid, Spain
-
Research Site
COMPLETEDMajadahonda, Spain
-
Research Site
COMPLETEDPalma de Mallorca, Spain
-
Research Site
COMPLETEDSalamanca, Spain
-
Research Site
COMPLETEDValencia, Spain
-
Research Site
COMPLETEDSödertälje, Sweden
-
Research Site
COMPLETEDUmeå, Sweden
-
Research Site
COMPLETEDLondon, United Kingdom
Conditions
Explore the condition pages connected to this study.