Groundbreaking registry aims to solve mystery of silent heart disease in black communities
NCT ID NCT05974644
Summary
This study is creating a registry to track 1,000 people who carry a genetic mutation that can cause a serious heart condition called hereditary ATTR amyloidosis. Researchers will follow both people who have no symptoms and those who have developed the disease to understand when and why symptoms appear, particularly focusing on the V142I mutation that affects many Black Americans. The goal is to gather better information to help doctors identify and treat this condition earlier.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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Locations
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States
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Conditions
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