Can a helper make video doctor visits better for ALS patients?

NCT ID NCT05621213

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looked at how satisfied people with ALS (Lou Gehrig's disease) were when they had doctor visits by video from home, with a nurse or physiotherapist there to help. About 38 patients who used a breathing machine at home took part. The goal was to see if this kind of care works well for them.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could show that home teleconsultations with a helper are a practical way to monitor ALS patients, potentially improving access to care.

What could go wrong

The study was terminated early with only 38 participants, so results may be incomplete. It only looked at satisfaction, not whether teleconsultation improves health outcomes.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • CHU Grenoble Alpes

    Grenoble, France, 38043, France

  • CHU Montpellier

    Montpellier, France, 34295, France