Race against time: scientists track 600 At-Risk people to stop ALS before it starts

NCT ID NCT06581861

Summary

This study aims to understand how ALS develops by closely monitoring 600 adults who have a family history of the disease but don't yet show symptoms. Participants will be followed for 3 years with regular check-ins, blood tests, and symptom tracking to identify early warning signs. The goal is to collect data that researchers worldwide can use to develop future prevention strategies and treatments.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Barrow Neurological Institute

    RECRUITING

    Phoenix, Arizona, 85013, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • CHALS-CCT, University of Puerto Rico, Medical Sciences Campus

    RECRUITING

    San Juan, Puerto Rico, 00935, Puerto Rico

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Columbia University

    RECRUITING

    New York, New York, 10032, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Dartmouth Hitchcock Medical Center

    RECRUITING

    Lebanon, New Hampshire, 03756, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Duke University

    RECRUITING

    Durham, North Carolina, 27705, United States

    Contact Email: •••••@•••••

    Contact

  • Georgetown University

    RECRUITING

    Washington D.C., District of Columbia, 200007, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Henry Ford Health

    RECRUITING

    Detroit, Michigan, 48202, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospital for Special Care

    RECRUITING

    New Britain, Connecticut, 06053, United States

    Contact

    Contact Email: •••••@•••••

  • Indiana University

    RECRUITING

    Indianapolis, Indiana, 46202, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • John Hopkins University

    RECRUITING

    Baltimore, Maryland, 21205, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Massachusetts General Brigham

    RECRUITING

    Boston, Massachusetts, 02145, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Mayo Clinic

    RECRUITING

    Jacksonville, Florida, 32224, United States

    Contact

    Contact Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Nih/Ninds

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Northwestern University

    RECRUITING

    Chicago, Illinois, 60611, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Ohio State University

    RECRUITING

    Columbus, Ohio, 43221, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Penn State Health

    RECRUITING

    Hershey, Pennsylvania, 17033, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Providence ALS Center

    RECRUITING

    Portland, Oregon, 97213, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Saint Alphonsus Regional Medical Center

    RECRUITING

    Boise, Idaho, 83704, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Temple University

    RECRUITING

    Philadelphia, Pennsylvania, 19140, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Texas Neurology

    RECRUITING

    Dallas, Texas, 75206, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • University of Alabama Birmingham

    RECRUITING

    Birmingham, Alabama, 35294, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of California Irvine

    RECRUITING

    Orange, California, 92868, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of California San Diego

    RECRUITING

    La Jolla, California, 92037, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of California, San Francisco

    RECRUITING

    San Francisco, California, 94143, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Colorado Anschutz Medical Campus

    RECRUITING

    Aurora, Colorado, 80045, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Michigan

    RECRUITING

    Ann Arbor, Michigan, 48109, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Minnesota

    RECRUITING

    Minneapolis, Minnesota, 55455, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Nebraska Medical Center

    RECRUITING

    Omaha, Nebraska, 68198, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Utah

    RECRUITING

    Salt Lake City, Utah, 84132, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Washington

    RECRUITING

    Seattle, Washington, 98195, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Virginia Commonwealth University

    RECRUITING

    Richmond, Virginia, 23298, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Washington University

    RECRUITING

    St Louis, Missouri, 63110, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.