Massive data hunt launched to unlock ALS secrets
NCT ID NCT05966038
Summary
This study aims to collect detailed health information from 5,000 people living with ALS and related motor neuron diseases. Participants will have their routine clinic visit data, like symptoms and test results, securely stored in a central research database. The goal is to create a large, anonymized dataset that researchers can use to better understand how these diseases progress and to help design future treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Centro Clinico NEMO Milano
RECRUITINGMilan, 20162, Italy
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Hadassah Medical Organization
RECRUITINGJerusalem, 9112001, Israel
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Henry Ford Health System
RECRUITINGDetroit, Michigan, 48202, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Istituti Clinici Scientifici Maugeri SpA
RECRUITINGMilan, 20138, Italy
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Kaiser Permanente
RECRUITINGLos Angeles, California, 90027, United States
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Lahey Clinic
RECRUITINGBurlington, Massachusetts, 01805, United States
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Loma Linda University Health
RECRUITINGLoma Linda, California, 92354, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
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Providence ALS Clinic
RECRUITINGPortland, Oregon, 97213, United States
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Saint Louis University
RECRUITINGSt Louis, Missouri, 63104, United States
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Tel Aviv Medical Center
RECRUITINGTel Aviv, 64239, Israel
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Temple University Lewis Katz School of Medicine
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15360, United States
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 22908, United States
Contact Email: •••••@•••••
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Conditions
Explore the condition pages connected to this study.