Gene therapy injection aims to halt blinding eye disease

NCT ID NCT06467344

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This early study tests a new gene therapy called ACDN-01 for people with Stargardt disease, a genetic condition that leads to progressive vision loss. The therapy is given as a one-time injection under the retina. The main goals are to check safety and find the right dose, with a first look at whether it might help preserve sight.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

ACDN-01 (a gene therapy given as a one-time injection under the retina)

What this could lead to

If it works, this could slow or stop vision loss in people with Stargardt disease and related retinal conditions.

What could go wrong

This is a very early, first-in-human trial with only 15 participants. It primarily tests safety, not effectiveness. Gene therapies can cause inflammation or other side effects.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

ABCA4-related retinopathy cone-rod dystrophy severe early-childhood-onset retinal dystrophy Stargardt disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Bascom Palmer Eye Institute

    RECRUITING

    Miami, Florida, 33136, United States

  • Casey Eye Institute OHSU

    RECRUITING

    Portland, Oregon, 97239, United States

  • Cincinnati Eye Institute

    RECRUITING

    Cincinnati, Ohio, 45245, United States

  • Massachusetts Eye and Ear

    RECRUITING

    Boston, Massachusetts, 02114, United States

  • Retina Consultants of Texas

    RECRUITING

    Houston, Texas, 77401, United States

  • Retina Foundation of the Southwest

    RECRUITING

    Dallas, Texas, 75382, United States

  • University of Michigan Kellogg Eye Center

    RECRUITING

    Ann Arbor, Michigan, 48105, United States

  • University of San Francisco

    RECRUITING

    San Francisco, California, 94158, United States

  • Vitreo Retinal Associates

    RECRUITING

    Gainesville, Florida, 32607, United States

  • Wilmer Eye Institute at John Hopkins

    RECRUITING

    Baltimore, Maryland, 21218, United States